March 26, 2011

Two years later

It's hard to believe that it was two years ago today that we were told that our sweet little girl would be born with Spina Bifida. What a dark and scary day that was.

If only they could have told me that this sweet face was the face of our precious daughter

If only they could have told me that she would have the most infectious laugh ever

If only they could have told me that my heart would melt every time I heard her sweet voice say "hi" or "mama"

If only they could have told me that her smile would light up any room

If only they could have told me that she would be the bravest, happiest and most loved little girl around

Then maybe, just maybe those last few months before getting to meet her wouldn't have been so difficult. Sadly, they didn't tell us those things, but guess what - that's okay because they are ALL TRUE!

I don't think I will ever forget March 26, 2009 and what was told to us on that day. That day changed our lives forever. But truly, our new life began on July 29, 2009 when Annabelle was born.

I am writing this post less for me but for the new parents who have recently gotten a diagnosis of Spina Bifida for their baby. I write this as a testament that what feels like some of your darkest days will eventually become a distant memory once your sweet baby is born. No Doctor can truly tell you what your child will or will not do - they are writing their own story and it will beautifully unfold with your love and support. Having a child with "extras" is hard, but honestly parenting in general is hard. Never give up and continue to fight the good fight! Be your child's advocate - you know them better than anyone else. Some days might be difficult but your rewards are endless.

I know these words above are sometimes easier said (written) than lived, but they are true and they are important. Annabelle is a blessing and we are all so thankful for her. It was a rocky start but worth every moment of fear and sadness to experience the great joy she brings us each day. She has taught us all so much.

Last night I reread last years "1 year Diagnosis Day post". The pain seems different, still so fresh. That isn't the case today. I guess it's true that time heals all wounds. I'm so thankful for that. March has been an extra month the last two years - not this year. Click HERE to see some of our families most memorable moments in Mach 2011.

I'll leave you with a prayer and this beautiful song:

Dear Lord, I pray that all families whose sweet child is diagnosed with Spina Bifida and are repeatedly offered termination as an option that they are some how guided to see that their child can have a happy and productive life. I pray that they will find other families like ours and seek out the support that they will need to walk this journey. I pray that each year I will grow stronger and will be guided by you to continue to make a difference not only in my families life but in the lives of others who are faced with difficult days.


  1. Oh I love this! I actually just recently posted this song on Babycenter..It's so beautiful, and I get goosebumps when I hear it. I too, wish someone had shaken me 2 years ago, and showed me what an amazing gift I was going to receive...I never would have been so frightened, and unsure of myself. I would have seen only the incredible little girl that was about to change everything...for the better.

  2. So true, in the beginning the diagnosis is so scary. But, it does not give an accurate picture into the future. And, the total joy our awesome children give us!

  3. Beautiful post. I'll just leave it at that. We all know the feelings.

  4. Oh My Gosh, that song is Awesome. And so is Annabelle! oxox

  5. AMEN!!! I am at the 1.5 year mark now and I can see that it won't be as bad to face that anniversary again. Wouldn't give him up for all the tea in China!

  6. Nik & Bran,
    I am consistently moved by your strength, courage and the power of your love for your children. You guys are the BEST.