October 18, 2010

Spina Bifida Kids Worldwide Day of Prayer

WHEN: Wednesday, October 20, 2010
WHERE: Wherever you are
TIME: 9 am PST (10 am CST / 12 pm EST)

As most of you know, October is Spina Bifida Awareness Month, and we SB moms have on our minds, more than anything, the precious unborn babies who are so often terminated before they even have a chance to prove their lives have meaning and value to the world. To say that 50% of all Spina Bifida affected pregnancies are terminated is a conservative estimate. But we SB moms know there is no reason to terminate a baby because of SB. Our children are beautiful and intelligent gifts from God who have every opportunity to live full, productive, and totally normal yet extraordinary lives.

So we proclaim Wednesday, October 20 as the Spina Bifida Kids Worldwide Day of Prayer. We believe in the power of prayer, and we are excited at the prospect of many people praying at the same time for these unborn babies. We moms can make a difference individually and collectively, but that is nothing compared to the change that can come if we have God on our side.

We will begin at 9am PST (noon EST). Pray for as long as you feel moved. Pray individually or pray as a group. On your knees, at your desk, while driving your car … the logistics do not matter.

Here are a few things you can pray about specifically:

1. There is one woman in particular who is on our hearts. God knows who she is. She is expecting a child with Spina Bifida, and she is afraid and considering termination. Today (Wednesday) is her appointment with a pediatric neurosurgeon to find out the severity of her baby’s case and to learn more about the diagnosis. Please pray that she will go to this appointment with an open heart and mind, that the doctor will give her a prognosis that is realistic and hopeful (we believe these adjectives are not mutually exclusive when talking about SB), and that most of all, God will give this woman a peace beyond understanding and a clear indication that she should keep her baby or give it up for adoption. There are many mothers willing to adopt this baby.

2. Obstetricians are usually the doctors who first diagnose Spina Bifida based on a prenatal ultrasound. Unfortunately, most know very little about SB except for what to look for on the ultrasound. Many of us were told by our OBs very scary and inaccurate information, such as “Your baby will likely not survive,” “She will be a vegetable,” “Terminating is the most loving thing you can do for this baby.” If this is the first time you’ve really even heard of SB, and a doctor you trust tells you this, you’re probably going to believe it. Please pray that these doctors will be educated about the SB prognosis so that they can give the diagnosis accurately and compassionately.

3. We SB moms will always remember the day we received the diagnosis as one of the most terrifying days of our lives. An initial grief response is denial, which often presents as “Please make this problem go away.” Termination is offered quickly. Please pray for these mothers and fathers, that they will first and foremost trust God to get them through this scary and uncertain time instead of letting fear guide their decisions. That God will draw near to them and make His presence known, as He did for so many of us. That these parents will be so filled with His peace about the future and love for their child that they will consider carrying the baby to term the easiest choice.

4. These precious babies are absolutely innocent and helpless. They are being thrown away because they are not “perfect.” Not one of us is perfect. Please pray for the lives of these babies to be spared. That each movement and kick will remind the mother that God knit that baby in her womb exactly as he or she should be. That their lives will bring glory to our Father.

5. Many of us SB parents cite the support of our family members and friends as the biggest comfort during the time right after receiving the diagnosis. But there are also families and friends who are unsupportive and even encouraging of termination. Please pray for these family members and friends, that God will use them to minister healing to the parents’ breaking hearts. That they will be wholly supportive, not hurtful, and they will lift up and help these parents as their raise their child.

Feel free to add other suggestions for what we should pray. And please pass this on to friends, family, church prayer groups, prayer warriors, pastors, and strangers.

“Again, I tell you that if two of you on earth agree about anything you ask for, it will be done for you by my Father in heaven. For where two or three come together in my name, there am I with them.” Matthew 18:19-20 (NIV)

I assure she is not suffering! This little girl loves life and we love her!


  1. My husband and I were moved by your prayer.
    We are praying that the Lord will help you in your situation.
    When we find our self in hard times we use a service called holylandprayer.com…hope you find it helpful.
    God bless you.

  2. I will be praying Summer...I agree wholeheartedly!! :D Blessings to you and your sweet family. Becca Beal

  3. Nicole, thank you for leaving me a comment on my blog so I could find you! Erin has told me about you...we should do a coffee date or a play date with all of us! Count me in for the day of prayer for tomorrow...!

    Annabelle is absolutely adorable!!!

  4. Nicole, I am just catching up on your blog and this post moved me so much. I am weeping for all those babies that did not get a chance to live because, like you said, they are not "perfect."
    You wrote so beautifully about it all and I am just in awe of all you have been through and are teaching others about through this.
    I know Annabelle and you, her mother, are blessing many people with this post and the testimony of her life and the gift that she is.
    I am so grateful to you.
    Thank you for speaking the truth!
    Love from,

  5. Greta - thank you for your sweet note. Although I agree 100% with everything written above, I can't take credit for it. It was written by my dear friend Colleen - http://whatnatesaidtoday.blogspot.com/ who is the moderator for our SB Mom's group. These were her words and actually her idea for us to pray together and to invite others to join. Our SB community was rocked (to say the least) when a pregnant mother came to us a few weeks ago and asked for advice, help and hope. We provided it only for her to return to us with news that she was seriously contemplating terminating her pregnancy and had created a poll on her blog to get others input. She then proceed to ask for our thoughts/input - as if having our children wasn't statement enough that we believe that ALL children have a plan and a purpose and deserve life. We were all distraught, heartbroken and sicken by the reality that so many believe that children who aren't deemed "perfect" in the womb should be discarded. It's an outrage and we have been fired up to do something about it. We are going to let people know that our children are AMAZING and deserve love, LIFE and respect!

    Okay, I got all fired up again. My beautiful daughter has provided me even more purpose in this blessed life. I will not be silent about this anymore.

    Love to you Greta - miss you lots!